So far Eric has had 2 chemo treatments with minimal side effects. I have managed to play Dr. Dial pretty well and de-accessed his port successfully. He is still able to go to work most days, but E is pretty tired. CEA levels are still up and down, up this time around. However his liver functions are almost back to normal. Dec 5th we go to Sloan for treatment and meet the chief of Staff for Interventional radiology to discuss surgical options to destroy the tumor.
Today I am grateful for so much. I am grateful for family and friends, and the amazing Doctors and nurses at Sloan Kettering. I am blessed to be spending another Thanksgiving with my husband. A year ago I wasn't sure if this was going to be a reality.
Thank you all for your continued support, especially for Eric, his son Mark, and my son Logan. It means a lot.
Here's Eric and his new pal Gunney. Gunney helps calm Eric.
I know I haven't updated in a while, there is just so much to write about, I need some tie to really think it out. But until then I would like to leave you with a post I put on Eric's facebook on March 16th, 4 days before Eric participated in his First 5k sponsored by Colon Cancer Coalition .
life can sometimes be about numbers. 5 months ago you were diagnosed with cancer and had part of your colon removed. the stage was 4. 4 months ago today you had the first round of your tumors removed from your liver. in 4 days you will run your first 5k. 5 weeks after that the rest of your cancerous tumors will be removed from your liver. you are beating the shit our of cancer, and I am so proud of you! I love you!
Eric Finished the 5k...he might not have come first, but he didn't come last, and he finished.He continues to beat the odds, those numbers in life.
Eric Finishing up the race with his friend Mike
Eric Anxiously awaiting the start of the 5k....notice Colon Cancer Warriors and Survivors wore special colored race bibs
Our Team: Dial's Dooker Troopers
I thought of a new song today. Eric had chemo yesterday and feels like complete shit. And a lot of our friends who are battling cancer has felt pretty shitty too lately. These lyrics came to mind....
But the good news Is there's angels everywhere out on the street Holding out a hand to pull you back up on your feet The one's that you've been dragging for so long You're on your knees You might as well be praying Guess what I'm saying
If your going through hell Keep on going, don't slow down If you're scared don't show it You might get out Before the devil even knows you're there
Don't worry....things will get better, and thre is a light at the end of the tunnel.
There is an awesome series in the New York Times following the journey of Dr. Bach, a physician at Memorial, whose wife was diagnosed with cancer. I found the blog from a post made on the Memorial Sloan-Kettering Facebook Page.
Much like myself, Dr Bach is blogging about his journey. His series, The Doctor's Wife is very real. In the first 2 submissions I have found myself nodding, tearing up, laughing (the form comment) and just FEELING everything Dr. Bach is going through.
Ok so I am not a Doctor, so maybe I do not know the clinical end, but I am a highly educated young woman who is so deeply in love with her husband that she will do anything to keep in him alive. I have taken on the role of caretaker, and have completely educated myself with regards to colon cancer, especially with regards to Eric's current diagnosis.
I highly suggest everyone take the time to read this frank account of Dr. Bach's journey.
If I could be you, if you could be me For just one hour, if we could find a way To get inside each other's mind If you could see you through my eyes Instead your own ego I believe you'd be I believe you'd be surprised to see That you've been blind
Walk a mile in my shoes just walk a mile in my shoes Before you abuse, criticize and accuse Then walk a mile in my shoes
Take my hand and we'll make it - I swear Livin' on a prayer We've got to hold on ready or not You live for the fight when it's all that you've got We're half way there Livin' on a prayer Take my hand and we'll make it - I swear Livin' on a prayer
Last week we hit a small bump in the road.We had asked for prayers to get us through it, and your prayers worked. Thank you so much! Still not 100%, so if you could keep those prayers coming that would be fantastic.
We could definitely feel the power of healing come from your prayers. Eric is recovering, and anxiously awaiting his CT scan next monday. The scan will determine how well he is responding to chemo, and if the tumors are shrinking. If the tumors are shrinking, then surgical consult will probably be made. They can then begin to plan his 2nd liver surgery.
We were excited to learn about something called "partial remission". It is when the tumors have shrunk 1/2 in size, and the docs can sometimes deem a cancer patient in "partial remission". Wouldn't that be a nice thing to hear next week?
Keep those prayers coming if you are the praying kind, and thank you to those whom prayer is new to. We appreciate you taking the time to pray for Eric's full recovery..
We are praying to Catherine McAuley for intersession in Eric's recovery. Catherine is the Foundress of The Sisters of Mercy, who is up for Canonization (and an Irish Lass) . We are praying to her in hopes that Eric's full recovery and cure from Cancer can be the miracle that will raise Catherine to Sainthood.
We ask that you say this prayer for Eric with us:
O beloved Catherine, through the power of my most compassionate Lord and Saviour Jesus Christ, I humbly beseech you to look with love and pity on Eric who is ill at this time. Stir up in me the same passion that impelled you to respond to the needs of your time. Bless me with the sure knowledge of your presence and with a complete trust in your providence. Use once again your spirit of compassion and your ardent desire to alleviate suffering and to restore her/him to full health if it is God's holy will. I ask this in the Name of Jesus who lives and reigns with the Father in unity of the Holy Spirit. Amen
Thank you all! I leave you with the song that played when Eric and I were announced ad Mr. & Mrs. at our wedding reception, at the time it had a much different meaning then it does today, but it still has a special place in our hearts! Also I request a special prayer for another one of Philly's finest, who just found out they have cancer at the age of 34. Prayer to you and your family JG, just like Eric you WILL beat this! ~Jeaneane
I don't know why But I keep thinking Something's bound to go wrong
But she looks in my eyes And makes me realize And she says "Don't worry baby" Don't worry baby Don't worry baby Everything will turn out alright
Eric's PET Scan was performed the wed before christmas. This was the first scan that was being performed and would really determine how much cancer was in Eric's body. yes we already knew Eric had Colon Cancer that had spread to his liver. And his liver contained multiple tumors (too many to take out in one liver resection). And yes he had already been diagnosed as Stage IVa (Stage IV is as far as this train goes just for a frame of reference, and IVb is the last station you can get off at). But this was going to determine how extensive the damage is OUTSIDE of what we know.
Well needless to say they made us sweat it out over the Holiday weekend. Eric was anxious and thought this was bad news. We had the Pet Scan performed in Princeton, as opposed to Memorial. They told us a preliminary report would be available within 24 hours, and alas it was not. So automatically he took this as bad news. I on the other hand, took into account the holiday...but that's a whole other story....
Anyway back to the PET. On Monday Eric has his systemic chemo treatment, which includes bloodwork and a visit with Dr. Lee. Dr. Lee is a super sweet doc, who really takes the time to talk to his patients. Usually we wait forever, but lucked out because of the blizzard, many people cancelled. Speaking of which, that blizzard really made it a bitch to get to Princeton, but I digress...
So Lee did his normal assessment, and looked at Eric's blood levels. HE platelets are back to normal, and the only negative in the bloodwork, if you could even consider it a negative, is that Eric is SLIGHTLY anemic. But this is to be expected with liver surgery. So he is getting ready to send us to Chemo, and I kindly remind him, "Don't we have PET scan results?" He honestly forgot to tell us. At that point I knew it was good news.
Essentially the scan found that the Cancer is contained to the liver. The lungs, lymphnodes,spine, and other organs were all clear. The only area that "glowed" was an extremely small inflamed area under the armpit. And they honestly think that has to do with Eric's Eczema, and would not be following a natural pattern of disease for Colon Cancer. So they are not too concerned about this area. The tumors also appear to have shrunk slightly, so Chemo is working. We were elated!!!!! And it is a weight off of Eric's shoulders. This gives him yet ANOTHER reason to keep kicking the shit out of this cancer!
The chemo still sucks. HE is starting to really feel the effects of it. HE is extremely sensitive to cold. Cold weather, cold drinks, cold surfaces. HE has to drink room temp liquids, or it feels like hards of glass are ripping apart his throat. He has to wear gloves to open the fridge, he got out of shoveling in the blizzard (although I think that was planned). Eric is having constant pins and needles feelings in his hands. Thats the neuropathy, and it gets worse with every treatment. His spirits are good though. He handles it like a champ! He still has a head full of hair (knock on wood) after 4 chemo treatments. This is Eric at Monday's treatment. He may still lose his hair, and that's ok. I am hoping that while he loses his hair, he will pick up a Scottish or English accent and I can finally bring to reality my fantasies about boinking Sean Connery or PAtrick Stewart. Yes I has a thing for older men who are bald with Accents. They are just so hot! I'm weird I know.
Eric's treatment Progression:
As always, thank you for your continued support and prayers. And remember Keep BELIEVING!!!!!
For parting my lips When I couldn't breathe Thank you for loving me
You pick me up when I fall down You ring the bell before they count me out If I was drowning you would part the sea And risk your own life to rescue me
Lock the doors We'll leave the world outside All I've got to give to you Are these five words when I Thank you for loving me
I pondered what to write in the blog today. Originally I was going to post yesterday, but the Turkey Coma I was in prevented and real thoughts from coming to my head. Plus I was trying to find a good song to leave you all with on this icky day.
Thanksgiving used to be my least favorite holiday. I hate the food, I really can't stand watching hours of football, I am usually tired from a particularly difficult school week (fellow teachers will understand), Logan is at his Dad's house (not that I care about that but I don't have my lil guy around), and somehow, someway, our family gets into stupid arguments over nothing,
But this year was different. This year I actually understood the true meaning of Thanksgiving. Ok not that I didn't understand it before, but I didn't appreciate the meaning before. I looked at Turkey Day as a great day to hang out with my family and drink with my cousins. This year I realized how grateful I am for everything that have.
The day was a great day for Eric as well. A day of laughter, love, and memories...with a heavy emphasis on the laughter. We started off at my Mom and Dad's house. My brother Sean had been out playing football with his friends and walked in covered in mud. My Mom started freaking out because he was so dirty, and she and my Dad told Sean not to get the shower dirty with all the mud. We could not stop laughing....How was he supposed to get clean, hose off outside?? lol Eric was laughing so much it literally hurt. While Sean was warming up by the fire my Mom started to clean his legs with Windex...I felt like I was an extra on "My Big Fat Greek Wedding". Angela you would appreciate it. Eric posted the pic on facebook and wrote this underneath "Love going to the in laws. Nothing like seeing ur mother in law use glass cleaner to clean mud off my brother in law after he just came in from playing football. Love the holidays."
Then we moved from window cleaning to fighting over the TV. Andrew, the youngest, was screaming at my Dad and Mom, because instead of watching football, they were watching HGTV. It was hysterical. Eric was hurting so bad from trying to stifle his laughter. My mom was yelling at me for laughing, so he didn't want to get caught. It got worse when my Dad realized "Miracle of 34th Street" was on (click Here for more about Dad's love of the movie). Andrew stole the remote and kept putting the game on during the commercials, but he did it in such a way that like every 15 seconds he kept changing, it was driving my dad nuts and he started yelling at him, "If I miss one second of "Miracle"..." OMG we couldn't stop laughing!
Eventually we ended up at my aunt Eileen's, and ate a fabulous dinner. During dinner we played a nice round of "Olney Trivia" (you have to be there to understand) led by my uncle Joey. And once again, Eric could not stop laughing. That say laughter is the best medicine, and if that is true, Eric got some great treatment last night. I predict 12% of his cancer masses were destroyed yesterday.
Now on to the list of things I am thankful for: *Another holiday season to spend with those I love *A real live superhero as a spouse *A super awesome Son who gives me reasons to smile every day *A great Stepson and his super supportive Mom who have been so fantastic throughout all of this *Supportive parents, who have done so much for Eric and I *My incredible family (The Kozlowski's, Conklin's, and extended Conway Families) who have prayed and supported us in some many ways since Eric was first diagnosed Thank you for making him a part of our family. "I am so happy to know what it feels like to be part of such a great family" -Eric (November 14, 2010) *True Friends both old AND new. Those of you who have been there for us these past 2 months without fail. Both near and far offering your prayers, love, and support *Strength we draw from other "Cancer Warriors" and their families. People like Angela K, Donna B., Patty B., Danielle K., Meaghan E., The Spirit Jumpers Family, and the strangers who shared their stories with me the week Eric was at MSKCC. *God granting me another day to appreciate his beauty and graces *My new found sense of faith. I have always believed in God, Jesus, and works of faith...but now it is something more, something hard to explain, but something beautiful *The laughter of children. No one can feel bad after hearing a child life *Co-workers of both Eric and I, who have gone beyond the call of duty. In particular: Theresa E., Capt McCarrick, Lt. McCartney, Sgt. McLain, Sgt. Barclay, and the Officers of the 2nd District. You guys have been beyond amazing *The strength to purge my life of negative things and negative people. Very hard to do, but very necessary. *and Finally, the strength and perseverance to fight for the man I love....no matter what obstacles we encounter.
And I leave you with a little Bon Jovi....Happy Black Friday!
In October of 2007 I happened to be watching Oprah, something I never do. But for some reason I turned it on and saw one of the most beautiful talks I had ever seen. Professor Randy Pausch was reprising his "Last Lecture" for millions. It was a condensed version of the 76 minute lecture he had given the month before at Carnegie Mellon University. I have provided a link to this clip, and I urge you to watch it before you move on, it will help you better understand where I am going with this.
Hope you had your Kleenex ready. But I guess I should have warned you about that. Now in 2007 cancer was the furthest thing from my mind. I had just gotten engaged that August, and was eagerly planning my wedding to the man of my dreams the following October. But Randy's lecture touched me in ways I couldn't imagine. It renewed my dedication to teaching, as I had sadly reached a bit of a rut that year. I had decided that "Never Giving Up On Your Childhood Dreams" was something my 7th and 8th grade special education students really needed to hear. I waited until the end of the year, after state testing, but I showed them that video clip. And we discussed how, as poor inner-city youth, they too could fulfill their dreams. Especially poignant, was the talk about people riding you that care, and about brick walls being there for a reason. You see, in urban education, often times 8th grade is the last year to try and "save" the kids that are teetering on the edge. And with that week long life lesson I know I at least made 1 student choose the right path. The following year the book came out, and I actually had my 8th graders read the book as well as watch the lecture in full, again I know that Randy helped me change the lives of some of those students.
Fast-forward to November 23, 2010. While tidying up some stuff in my room I found the copy of "The Last Lecture" that I gave to Eric for our first wedding Anniversary last year. You see 2008, before we got married, was a very difficult year for reasons that are too long and complicated to get into. But we faced devastation all around, that continued in that first year of marriage. It was hard to stay happy when things sort of sucked. And Eric took some things and the loss of personal relationships with those he considered friends very hard. When the book first came out, Eric, a non-reader, was engrossed in it and finished it in a few hours. So I figured for that first anniversary, and to tip my hat at the tradition of giving paper, I would give him his own copy.
Yesterday I opened up that copy of the book, and read the little note I wrote on the cover only a year ago:
Dearest Eric, I got you your own copy! If anything, this book demonstrates that one can never give up. There will always be obstacles in life, but any obstacle can be overcome. In the midst of every dark shadow is even the smallest ray of light. Do your best to find that ray... Happy Anniversary!
All My Love, Your Wife
These words could not be truer only a year later. There is a reason I found this book. I needed to remember the wise words of Randy Pausch. I needed to be reminded that, "We cannot change the cards we are dealt, just how we play the hand." I needed to remember how much every little memory in life should be cherished. I also needed to remember the strength that I know I posses, even when I don't think I do.
So Eric here we are with a big shadow enveloping us....or so it seems. But somewhere, somewhere in all this darkness, is our ray of light. Our love will help that ray to shine even brighter...so keep fighting baby and I'll keep loving with all that I am.
Those of you that really know me know that music has always played a big role in my life. This fight is no exception. Plus it helps explain the reason why you will see a lot of lyrics on my pages. Music tells the story of our lives...and this is just another chapter.
But yesterday I did see a sign. I actually saw a lot of signs. But they all filled my with joy and helped me to realize things are going to be ok. We are faced with some temporary pain and sadness so that we may have a lifetime of love and laughter.
Yesterday was a great day for both Eric and myself. On Wednesday night our friends Dianne and Kelly came up with Dianne's son Jack. Jack leaves Eric the cutest messages, and I knew seeing the lil guy would really lift his spirits. So Wednesday night I left the hospital around 8 and met the crew at the hotel. The adults had several libations (which I paid for the next day...) and stayed up laughing. I needed a laugh, it had been a really tough week.
My mom decided on Wednesday night that she was going to venture up to NY with Logan so he could see Eric and I. It was perfect! This way I knew we could see Eric and then take the boys (and girls) on the town. So my Mom drove to Hamilton station in NJ, took a train and 2 buses with Logan to see us! If any of you now my Mom that is huge! She met, Dianne, Kelly, and I at the hospital. Eric got to see Logan and laugh at Jack, as well as spend some time with Dianne (another Officer in the 2nd) and Kelly.
But it keeps getting better! Around 1pm who shows up but Eric's Sergeant Jay, Lieutenant Tom, and "handler" Stan! Eric's Supervisors in the 2nd Dist are true class! How nice of them to take a day to come visit him so far away. As soon as he saw them his face lit up. And them coming gave me the opportunity to spend the day with Logan. The guys stayed until about 4, and Eric was so happy to see them! Thank you so much guys!
So off we went, My mom, Logan, Kelly, Dianne, Jack and I venturing through NYC. We walked from E67th and York to W34th and 7th...almost 3 miles. But we took in the sights of 5th Ave and and the Xmas Decorations, Rockefeller Square Times Square, Toy r Us (where Dianne was awesome and bought Logan a birthday present because he could not make up his mind between 2 items), and finally ended up at a Miracle on 34th Street...Macy's.
Anyone who knows my Father knows that Miracle of 34th Street is his favorite movie of all time. We watch it every Christmas for as long as I can remember. My dad loves Christmas, you can see the Twinkle in his eyes the closer it gets. And to him Miracle on 34th Street IS Christmas.He was the one who actually told me that's where Macy's was located. For those not familiar here is a trailer:
Miracle is so many things, but above all its about the power of the human spirit, and ones ability to Believe, despite all obstacles.
I had seen on the news that Macy's had revealed there Christmas Windows. I wasn't sure what it was but I really wanted to see them. When I turned the corner at Herald's Square, much to my delight I saw that Miracle on 34th Street was this years theme! The window glare made it hard to take pictures, but it was amazing...
We continued along 34th Street looking at the windows when I looked up to see the Christmas Lights. My eyes filled with tears and a smile slowly came across my face...it was a sign. On the 34th St side of Macy's, in huge writing, was the word "Believe". And it was at that point that I truly realized that things are going to be ok. It's not going to be easy, and there are going to be many obstacle along the way, and of course there are going to be those low moments when we are going to want to give up...That's life. And to think that those things won't happen, or that there will be days of self-pity and depression is insane. But when I looked up at that stately building on Herald Square and saw those beautiful words, I knew that eventually every thing will be ok. Like little Susan, even when I have warranted doubts, I just has to let go...and Believe...
Paying anything to roll the dice Just one more time Some will win, some will lose Some were born to sing the blues Oh the movie never ends It goes on and on and on and on Don't stop believing Hold on to that feeling
Well things don't always work out they way you plan them, or the way the doctors plan them, hell even the way life plans them. And when you first realize your plans go wrong you are pissed. Then you get over it. Then you determine that you need to keep fighting. That was my day yesterday. Our first real setback since diagnosis.
Yesterday we work up at 7am and got ready to go to the hospital. We had to be at Sloan at 9:45, but were antsy to get there early. Despite the rain we were able to get some town car to go there. I was pissed because the African dude didn't have a meter and was playing "What do you want to pay?" I finally just threw him a ten, so we could be on our way. I probably over paid, but whatever I am by no means a city girl...and certainly not a NY city girl.
Even though we were early, I am glad they took him back right away. Some vital checks, a lot of waiting, but we knew surgery was to take place soon. One super sweet nurse had a pep talk with E and told him not to be scared. She had him doing breathing exercises...I was laughing, it looked like Lamaze. But it did help. He was much more relaxed....below is BEFORE his pep talk...
At noon they had him walk into the operating room. When I asked a nurse why he was walking, the nurse said studies found that when patients walked into the OR they are not as nervous and scared. You could see that as he was walking and carrying on a conversation with the anesthesiologist.
I was prepared for Eric to be in surgery 6-8 hours. I received a phone call stating surgery started at 12:25pm. I was to be updated at 1:40. When they came for an update they told me Eric was in the first part of the surgery, the liver resection. The plan was to remove the affected areas of the liver (the 2 major tumors positioned mostly on the right lobe [on the picture it is the larger of the 2 lobes] , and a few smaller surface tumors). However when they opened him up, they saw things that the testing did not reveal. Now we were warned this could happen, but at the time it didn't really seem like a possibility.
After 3 hours in surgery I received a call telling me to come back up to the floor, the operation was finishing up. I knew immediately something did not go right. I was expecting to be waiting minimum of 6 hours. Well when they opened him up they saw many more tumors then anticipated, on both lobes. Dr. D'Angelica determined that he could not safely remove most of the tumors without risking Eric's life. Basically, if he cut out all the cancer, Eric might not be left with enough healthy liver to survive. Instead they cut out 2 tumors and burned another in the left lobe. Now the left lobe is cancer free. They removed the gallbladder and installed he HAI chemo pump. They determined that Eric will need to have chemo to try to shrink the tumors on the right lobe, before they can attempt to resection again. Dr. D'Angelica explained that this 2-part resection is the best course of action for Eric.
So here we are...Eric will be recovering at Sloan for approx 6 days. While he's mad things didn't go as planned, he is determined not to let this setback hinder his fight. He was up and walking several times today...less then 24 hours after major surgery. I am so proud. And, as always, Eric is a wonderful patient and the nurses LOVE him!! But who wouldn't love a handsome guy like him teehee!
Chemo is going to start within the month. After 3 months of chemo Dr. D'Angelica will determine if Eric can have part 2 of his liver resection. That means surgery, and the possibility of being cancer free could be a mere 4 months away!!! Wouldn't that be a perfect 30th birthday present for me considering surgery could take place in March, Colon Cancer Awareness month, AND the month of my birthday. Yippee!!!! Until then, we embrace being temporary New Yorkers, and enjoy the view from the room...