This is a major blow. His cancer is no longer controlled and managed.
Instead of folfox, he is sticking with xeloda and adding the oxali. Mostly because he hates being accessed for 3 days. But it's essentially the same thing. The KRas mutation obviously complicates things now. It really limits the amount of treatments he can get before his options run out. They were going to put him on the CPT11 and oxali combo but she has decided to hold that in reserve for when she really needs it. She also said lung surgery will happen soon, she is just waiting for a particular doc that is coming back to mskcc.
Eric is having a really really hard time with this treatment. I think being on xeloda, with all ts manageable side effects, spoiled him a little. Sure he got sick, but he clearly forgot just how ad the oxali is. He is sick. Very sick. barely eating, always sleeping when he gets the chance. E says it feels like he has been hit by a MAC Truck. Just a horrible constant nausea and weakness. And this was only the first round...it doesn't get any better. This is his off week, so hopefully he rebounds before treatment next monday. Pretty much this entire weekend was spent in bed with a bucket next to him. And the other horrible side effects of the oxali are the neuropathy in the hands and feet, and the inability to touch/tolerate cold. Even the slightest chill in a beverage feels like glass shards going down his throat. ITs going to make summer so much fun...insert sarcasm here.
We found a local oncologist out of Doylestown Hospital that we will be using for some of the infusion visits. Since they are biweekly now, going up to NYC every other Monday would just be ridiculous. We are moving to North Wales next month, and Doylestown will be super close. I have a family member that goes to this oncologist, Dr. Lorraine Dougherty, and I have heard very good things about her. Hopefully she is a good match.
I guess that's it. Nothing much more to say. The whole thing just stinks! Below is a pic from infusion last Monday, at least he is staying positive despite the tremendous disappointment.
