Thursday, December 27, 2012

glad christmas is over

This one was a tough one. Ever since we got the scan results before Thanksgiving I tried to have holiday cheer, mainly for the sake of my son, and partially for the sake of my own sanity. Even though previous Christmases have been cancer filled, this one just got to me more.

Eric really hadn't been out of bed much in over 2 weeks. All weekends were spent in bed...evenings from late afternoon on were spent in bed. The whole holiday was spent in bed. It was so sad. And he felt so horrible and worn.

I ended up delivering the presents to his son. Eric had wanted to do it but he was too worn. I called my mother in law to wish her a Merry Christmas. It was heartbreaking. Eric didn't even have the stamina to speak with her Christmas morning. He was able to open some gifts in bed Christmas morning. I made sure I snapped a shot of it, even though he got mad. I wanted a picture. I wanted something from this holiday.

Logan and I went to church together. It was so depressing looking around and seeing all the happy and HEALTHY families around us. Ok, maybe not everyone is healthy or happy, but they were well enough to make it to Christmas Mass with smiles on their faces rather then laying in bed in pain and exhausted. After communion, the whole church began singing "Silent Night". That's when I lost it. I started weeping silently in my pew and couldn't stop. People around me were staring and probably thinking I was insane. Luckily Logan didn't seem to notice. In a church full of people singing about the birth of our Lord, I had never felt more sad and alone. I prayed to God to help me, to give me strength. I prayed for strength for Eric. I didn't pray for him to be healthy. I know God already has his plan. Good or bad, I don't know, but he has already decided.  I just prayed for the strength to understand and accept his plan. I prayed for strength for Eric to continue to fight. Whether he is fighting for his cure, or fighting to stay with us as long as possible, I want him to continue to be whole. 

He never made it to Christmas Dinner. Thanks to some generous souls at The Breathing Room Foundation, I had a nice frozen meal I got ready for him. Logan and I went to my parents first for some gift giving then Aunt and Uncle's for dinner to spend time with the Conklins. I felt guilty for leaving him, but knew I needed to keep some sense of normalcy for my 12 year old. But overall, this Christmas was just rotten.

Well here is to a better 2013. Because 2012 was rotten too, and so was 2011, and the last part of 2010. 2 years and 3 months straight is a really long time to be fighting this horrible disease without any sort of break. That's a really long time to be sick every day. Hopefully 2013 gives Eric a break, and us a chance to reboot.

PET Scan and CT Scan first week in Jan. We find out the results Jan 14th. If cancer growth is reduced or stabilized we are happy. If cancer has grown or spread, then we reach our first official chemo fail, and 5FU and Xeloda will no longer be a treatment option. Remember there are only about 4 different drug options for Metastatic Colon Cancer, so a drug fail super sucks.

Thanks for all the prayers. We really need them.

I got lazy...

Here are some back dated posts from Eric's carepage. I put them in chronological order. Then I will do an update today. I suck.

A chance to breathe...

Posted Sep 14, 2012 2:54pm
We finally got some good news this week. We got the results back from Eric's PET Scans, and they were clear, showing no disease present. This is incredible news, and I guess in some way a shock.
Eric is to continue on chemo for an indefinite amount of time. This is an offensive measure. From the beginning we were told that even when all tumors were removed, Eric would have approx 6 months of chemo to be sure they killed off all the disease.

The CEA level dropped from 10.2 to 8 in a month. We are hoping it continues to drop. The CEA marks the presence of disease. Once we start seeing numbers below 4 we know this is going well.
So I guess we begin the road to remission. Don't know if I would clinically say Eric is there yet, but it sure is a weight lifted off of his shoulders knowing that they do not see any disease.
However, since he will be continuing on chemo, he will still have the fatigue and million other side effects it causes. Fingers crossed this journey is almost over, even if just for a little while.
Thank you for your love, support, and prayers. As always, BELIEVE.


nervous as hell

Posted Nov 13, 2012 8:34pm
Tomorrow Eric goes for another round of PET and CT scans. I'm a wreck, so is he. The September ones were clear, so these results could be life changing. These results may be able to tell us whether or not Eric is finally ahead of this disease after 25.5 months of chasing it. If these scans are clear then he may be able to stop chemo. If he stops and his scans in 3 months stay clear then he begins remission.

But there is always a chance the scans wont be clear. Since he is on chemo and the last scans showed no presence of cancer, if these next ones do, then the chemo is considered a failure and we have to try something new. There are only about 5 types of chemo Eric can use successfully, we can't afford a failure, and quite frankly, he deserves a break.

So tonight I am saying my prayers and hoping the scans are good. We will not get the results until Monday, so its going to be a long 5 days and Eric is going to be a freaking basketcase. So any kind words you can send his way would be great. Help get his mind off things. And if the news isn't good in Monday, well we will fight on like we have since the beginning.

And as for me, ill keep it together and put on my brave face like I always do. Some day ill have my meltdown ...just can't have it yet ;-)

Silver Linings Playbook


Posted Dec 2, 2012 2:29pm
I feel like we are forever looking for the silver linings. Don' get me wrong, I am not complaining, but the ups and downs really start to take their toll.

As we are well immersed in our 3rd holiday season since Eric's diagnosis, all around me I can find things to be grateful for. Loving family, true friends, wonderful jobs and coworkers, and Eric being here to spend another holiday with us. We are lucky, many people don't get to live to see another Christmas, let alone 3, after a diagnosis like his. But the length of this battle is taking its toll physically, emotionally, spiritually, and any other "ly" you can think of.

I wasn't going to share this information, as I wasn't sure how much Eric wanted people to know. But we told our families, and Eric said it on facebook, so I figured I would let the other people who have supported him since day 1 know. The PET scan results we received right before Thanksgiving were not good. They weren't horrible, but they weren't good.

If you recall Eric's scans in September showed no disease, but to be offensive they kept him on chemo. It seemed that the last of the cancer that the docs had been chasing for 2 years was finally gone. Sadly, this November scan showed disease in the liver. New disease. Disease that grew while he was on chemo. Its a small amount, but it is there, and it is very disheartening. The liver had been cancer free for a year. This is a bad blow. Also CEA tumor marker went from 6.8 to 9 in a month, indicating cancer growth.

This stinks, and Eric was pretty upset (as I was), but he is taking it with stride now. They decided to keep him on the same dosage of the same chemo until the next PET scan in Jan. I think they are trying to get him through the holidays comfortably. This regimen has been , by far, the easiest for him in terms of side effects and mental toll. Kemeney already has a game plan I am sure. If there is more growth in the next scan he will prob be put back on the big guns, and life will really suck. The big stuff is terrible. It turns Eric into a real "sick person".

So this holiday season, please remember whats important. I know I am. Laugh a little more, smile a little wider, hug a little tighter, and say I love you to those who you do...you just never know what tomorrow will hold.
Peace & Love,
Jeaneane

Eric's Cancer Fight Countdown: 790 days of fighting and living since being told he was going to die.

Sunday, September 2, 2012

Say goodbye to Hollywood...say goodbye my baby

Movin' on is a chance you take 
Any time you try to stay - together 
Whoa
 Say a word out of line
 And you find that the friends you had 
Are gone forever
 Forever...
I really haven't blogged much this summer. Things, minus complications and infections, were fairly good. E and I had been great. I mean a few nasty cancer stemmed fights here and there, but never did I really question our strength for quit some time. I guess I can't count on that lasting forever. There have been so many ups and downs these past 2 years. So many people in and out of ours, but particularly my life. They really don't lie when they say you see who you can really count out during the rough times. Sadly the only person that I have found I can truly rely on is myself, and now I am starting to question that.

 I never said I was this amazingly perfect wife, mother, friend. I am far from it. I guess I was just able to put on my big girl panties and wade my family through the craziness of this cancer journey the past 2 years. But I am starting to fall apart. I fell myself losing grip on all that I love, and all that I fought hard to sustain. I find that I am becoming so sad, all the time. And I have no one to talk to. I guess a good chunk of blame needs to be put on me. I am too stubborn and bullheaded to get help, and I am a fierce momma bear when it comes to those I love. People have viewed me as crazy. Indeed a complete 302, because I would go to insane lengths to try and keep my family and my love in tact. I was insanely jealous of anyone E turned to instead of me. I think more then jealous, I was just so damn hurt. I mean shit, I am his wife, I am supposed to be his best friend, fuck I am the one taking care of him. But then he would share his fears and his hopes and dreams with others, and I was devastated. So I became nuts I guess. It didn't matter. In the end he didn't choose me. NEver had, never will. Everyone else always comes first. He never sees my pain. Even when I can no longer hide it, its like, "who the hell are you. Dont start your bullshit tears. You aren't the one that is sick."


 I am getting increasingly agitated with the boy, and he doesn't deserve my frustrations to be even remotely taken out on him. And I feel E and I pulling further and further apart. I am scared he is becoming the guy he was before, the guy who hated me. I feel like life is full of secrets again. Whether it is him not wanting to hurt me or whatever, I still feel like I live under a veil of secrets. Its a horrible way to live. Maybe I am just becoming paranoid. If I were to closely examine the 5 Stages of Grief, I would say I keep hoovering over acceptance and depression.I mean I have accepted from the beginning. I mean shit I married a cop. I knew there was always a chance he would never come home. I'm not stupid. I know what cancer does, how cancer can kill, but I also believe in miracles, and love, and strength. I thought that if I did all that, and so did E, nothing could stop us, nothing could take our love away, not even cancer. YEar ago, before we got married. E used to say it was him and I against the world. I don't really think that anymore. I honestly don't think he wants me to be his side kick anymore in this crazy journey. And if he does, he sure as shit has lost all understanding of how to show it. BEcause quite frankly, saying I love you, isn't showing it. And the only time he wants or needs me around is when he is sick, or has an appointment, or needs me to be his caregiver. I can do that, thats fine. I can be his caregiver if that is my role. I would never stop taking care of him, or loving him...even if he no longer loves me.

I guess no one will really understand this. I don't really think anyone could unless they live through it. quite frankly i dont even know why I am blogging about it, to complete strangers, but it did finally help the tears come. I had been holding them back for awhile now. Because, hell, who am i to be crying right? I am not the one who is sick! I will never understand what my husband goes through. But then again, he will never understand, respect, or even care about what I go through. Because I dont matter. IT's all about the person with cancer, not the rest of the family who is falling apart. And this is Stage 4 cancer, this isn't some joke. Maybe it should be all about him. But then again, I thought tragedy and heartache like this was supposed to bring you closer to the ones you love, no further away. But I guess in some respects he is growing closer to everyone else, just not the person who will stand by his side in good times and bad.

Guess it's time to just buck up and say goodbye to hollywood, and goodbye to my baby...because I dont think he is mine anymore anyway.... 

Sunday, August 26, 2012

Keeping up with the Komplications

Eric started xeloda again 4 weeks ago. Last monday was the beginning of the 2nd round in this cycle. So far he seems to be doing ok with it. Today is his last day of chemp before his weeklong break. We had our 2nd appointment with the derm on monday, as his skin is still breaking down something awful. They are going to try another form of ointment which eric used awhile ago. They are also going to keep him on a constant low dose of antibiotic (doxycycline)to try to ward off infections, but we need to be leery of him getting c-diff again. His cultures have come up positive for Staph, and acinetobacter. So it is obvious the need for antibiotics is there, or he is going to end up in the hospital again. Then I get a phone call from derm on tuesday saying Eric tested positive for a different staph strain, but so far not showing as MRSA. But this staph is resistant to the doxycycline. So after a few days on that he had to stop, and use hibiclensse bath and an ointment until we meet with infectious disease in 2 weeks. Grrrrrr!!!

Dr. Locatoure, the derm, wanted to treat Eric with an additional chemo called Methotrexate solely for the purpose of trying to control the skin breakdown. Methotrexate is used for some forms of breast cancer and leukemia, but it can be used off label for chemical abortions and autoimmune disorder, like Eric's eczema. It can have adverse effects on the liver, which Eric only has 1/3 of. As a result, for right now, Oz (Dr. Kemeny), nixed it. In a way it sucks, because Methotrexate is really a great way to treat the skin breakdown but she does not want to interfere with the effectiveness of his chemo for the colon cancer mets. Its frustrating, but I am sure there is some wisdom to it.

Other than that we continue to take things one day at a time. There are bad days, and then some not so bad days. The good days are few and far between anymore. But every once in a while there are some good days thrown in there. The neuropathy is getting intense at times, as he is showing symptoms from chemos past. The worst thing is the trunk neuropathy, where several times, well honestly almost constantly, he feels like he is being stung by thousands of bees on his entire trunk region. We are hoping that as the skin recovers, this will go away as well. It is not a common side effect to any of the chemos that he is on, so they believe it is either a side effect of his his most recent surgeries (some sort of nerve damage), or the result of the trauma to his skin. We are obviously hoping this is temporary and not permanent, as it causes Eric a great deal of pain.

So far we have no other appointments until September. The first week in September Eric will have a PET scan and a CT scan. The following week he will review the results with the docs. By that point he will have had 2.5 rounds of xeloda in his system post surgery. We pray that there will be no signs of disease. Until then, as long as there are no changes, I probably won't have anything to update.

Monday, August 6, 2012

When you try your best, but you don't succeed. When you get what you want, but not what you need...

When you feel so tired, but you can't sleep
Stuck in reverse

And the tears come streaming down your face

When you lose something you can't replace
When you love someone, but it goes to waste
Could it be worse?

Lights will guide you home

And ignite your bones
And I will try to fix you

And high up above or down below

When you're too in love to let it go
But if you never try you'll never know
Just what you're worth

Lights will guide you home

And ignite your bones
And I will try to fix you

Tears stream down on your face

When you lose something you cannot replace
Tears stream down on your face
And I...

Tears stream down on your face

I promise you I will learn from my mistakes
Tears stream down on your face
And I...

Lights will guide you home

And ignite your bones
And I will try to fix you




Chemo resumes today. Xeloda at a lower dosage then before to see if Eric gets toxicity again. He doesn't want to be on IV chemo, so we are hoping a lower dosage works. CEA level has increased from 9.8 a month ago to 10.2, despite the tumors in the lungs being removed. So clearly there is still cancer in his body. Pretty bummed.

We got into a fight the other day. He was yelling and screaming that he doesn't care anymore. So I gave it right back to him. I told him to give up then, stop fighting, stop letting so many people waste their time and energy supporting a person who doesn't care anymore. I got so mad and told him in frustration to stop all the treatments then, stop going to NY, stop taking up space and time someone who wants to live would be happy to get. I asked him why would he continue to have surgery after surgery and chemo and all the other nonsense if he didn't care anymore? his response-Because he felt like it. Then I called him out on it.  I told him that when you really don't care you stop saying anything at all. I forced him to hear me say that I know that he does care, and that he is scared to die. I told him anything you love is worth fighting for, and no matter how mad I made him (and boy did I make him mad), I was still going to fight for him, even if he wasn't going to fight for himself. I know he cares. But I know he is frustrated. The confirmation today of resuming chemo was just another blow. 

I'll keep pushing him. I swear to this. No matter how much he may hate me, I will push him. I WILL NOT let him give up. He has too much to fight for. He is tired and broken. But no matter what Eric, I promise,  I will try to fix you...



Saturday, July 21, 2012

Yes, I understand that every life must end...As we sit alone, I know someday we must go...

SPOILER ALERT:  Eric's Post-Surgical Report, a Thank you, and a Sad Farewell.

Yesterdays surgery went beautifully. Surgery last a little over 1.5 hours. Dr. Solomon was able to ablate all visible disease in the left lung. There was one point where they were concerned his lung was collapsing, but more time, oxygen, and meds ensured this did not happen. But more then that, I think at that near that exact moment, an Angel was watching over him, you will read about that below.... Eric had to have 3 post surgical xrays and stay in the PACU until 4pm. Surgery started at 8am. It was a long day but he did awesome. his body responded so well to the surgery that Solomon ok'd him to have the second surgery on the right lung in a mere 3 days. The right lung is a little more concerning, as he has had fluid in that lung very recently.

So back we go again to NYC for an appointment Monday and surgery on Tuesday. I think to save some time and stress, we are just going to send Monday night in the city.
                               Eric Right before being wheeled back to surgery...
          I told him the hair net reminded me of the opening of Laverne & Shirley



Also, I would like to say thank you to those who attended the last min benefit at Maggies on Thursday. Eric had a fantastic time, and was really surprised and happy to see so many friends there to support him. It was just what he needed to gear up for surgery the next day. I want to share with you a message he put about the night on his Facebook page. Please ignore the spelling errors and grammatical errors, Eric wrote this last night when he couldn't go to sleep.


Eric F Dial
8 hours ago via mobile

Ugh can't sleep again. But anyway had giving me good time to think. About how to put into words about lastnight at maggies. Sorry for the late responds. The last 24hrs have been very crazy. For those of u that know me I'm not big on speeches and I'm a shy guy. But here goes. I would like to thank Maggies john Nagele and I'm not sure of the others that put lastnight benefit thing together. I greatly appreciate it. But you didn't have to do that for me, I'm sure there is more deserving people people out there more then me. I can't out into.words how i feel. With the love and support everything has giving me and my family. Its was a great surprise coming and seeing all.the support of good friends and people i didn't even know. It was really heart warming. Especially since i had no clue what was happening. And glad i was able to.attend. but anyway don't want to bore anyone with along message. Just wanted to.say THANK YOU. From the bottom of my heart. Love u all. And may god bless each and every one of u like he has blessed me. ♥ ...u know what this cancer is the best thing that could if happen to me in a sick way. It was a reality check to me. To not take things fir granted. And appreciate the things in life u have. And it actually made me a,better person then i was. I take every day in stride one day at a time and live life to the complete fullest. And i think the world be a,better place if everyone did the same.

Finally, I would like to take a moment to pay my respects to another Cancer Warrior who lost her battle with Breast Cancer yesterday. I never had the opportunity to meet Linda Furlong Hill personally. She was a coworker/friend of my friend Jenn. Her husband is a Philly police officer too, so Jenn thought we would have a pretty good connection. Linda was a nurse at Arias Torresdale who found out she had breast cancer while pregnant with her now 2 year old son. Jenn suggested I "friend" Linda, and I am so very glad I did. She became a DAILY inspiration to me. Her spirit and determination to live left me in awe. After her diagnosis 2 years ago, surgery and treatment, she enjoyed several months of remission before cancer reared its ugly head and spread to every part of his body. Even when it hit her brain she STILL WOULD NOT GIVE UP!!! Linda didn't lay in bed and feel sorry for herself, she pushed herself to make the most of what time she might have left.

She wrote the following on her Facebook about me section, and I think it pretty much gives you an idea of what an amazing person Linda was:

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."


I am a wife and mother of 3 beautiful children. I lost my Dad to colon cancer in 2004..I myself was diagnosed with Stage III Triple Negative Breast Cancer this year. It was found during my pregnancy in my left breast. I also had a benign mass in my right breast...that also had a 25% chance of turning into cancer so on top of having a radical mastectomy with 7/14 nodes positive removed I also opted to have myright breast removed as well...to be proactive in my treatment. Plus my breasts were so large I would have been very lopsided. My double mastectomy was exactly one week and a day after having my son, due to the aggressive form it was. And I was allowed 4 weeks to heal prior to starting my chemo. 8 rounds...4 with Adriamycin and Cytoxan...and the next 4 with Taxol. So far 5 rounds complete and 3 to go.I also tested + for the BRAC 1 gene..so the removal of my ovaries are also in my future due to the high risk of Ovarian Cancer. And my fear is that my children now have a 50% chance of having the mutated gene. But the GREAT Part is...is that they are now 10 STEPS ahead of cancer and now they can prevent it. Due to the POWER of Knowledge!!! I no longer look at Cancer as something all bad...cause as I see it...it may have attacked me...but it will NEVER take my children or their children...ALL because the POWER of knowledge. My Breast Cancer has SAVED my legacy!! I had my head shaved by my hubby after the 2nd round. Had fun wig shopping....but for the most part I rock my bald head at home and pretty nice hats out in public....and the wig sometimes. It has been a whirlwind of emotions in the short time since I was diagnosed on June 17 2010. The Life Events I have experienced in this short time...I know most people don't in a Lifetime. But I know that is what makes me a strong person and soon to be a survivor. I know the war will never be over but I expect to win the battle over and over again. I try not to think of the "what if's" anymore because I have no control over them....but I do try to just live my life and do me. I have alot to LIVE for...and I refuse to let cancer take that from me. Afterall I am one Tough Bitch....

Linda T. Furlong Hill
3/12/77- 7/20/12
"Fuck Cancer"


Linda, you fought long and hard, and now you are free. Cancer can no longer hurt you...

Friday, July 13, 2012

The 10 o'clock News.

CEA levels went down from 13 to 9. Clearly the infections raised the levels significantly from the 6 it was the week before. But 9 is still high indicating an increase in the disease. Dr Kemeny has decided to wait until after the lung tumor removal surgery to resume chemo. Clearly chemo must be resumed to keep disease at bay.

We are here.in NYC to see the pulmonary specialist. Eric was conditionally cleared for surgery next week as long as the wheezing in his lungs had subsided. We are here today to get a complete clearance. Mondays pulmonary function tests revealed that.Eric's lung functions have decreased 35% since last year. Not a good thing, and clearly demonstrating how the metastasis of the disease to the lungs has effected him.

The first of 2 lung tumor removal surgeries is scheduled for July 20th. They will remove disease from the left lung. Approximately 2 weeks later (date to be determined) he will have surgery on the right lung. Both surgeries at this point in time have been denied coverage. We have decided to go forth with the surgeries regardless and appeal the coverage denial. We risk paying out of pock for these surgeries (tens of thousands of dollars) but I don't want to gamble with Eric's.life and face the possibility of the disease continuing to spread while we wait for it to be covered. His CEA level continues to steadily increase clearly indicating that the disease is spreading. I want every tumor visible to the eye to be removed and chemo to resume ASAP so that we can finally get ahead of it.

As always thanks.for the.love and.prayers

And for a little laugh, here is E's facebook status after today's clearance:



Sunday, July 8, 2012

Past 2 months in 2 minutes

I haven't updated since May, mostly because not much had happened, then life became a clusterfuck. Eric went through 5 rounds of Xeloda before being hospitalized for chemo toxicity. Well that's what they think it was, because they really had no idea. We were stuck at Abington for 6 damn days. I was down the shore for the Fallen Heroes M/C Ride. Eric was supposed to participate, but felt so sick he went home. The next day my Dad took him to the ER, and I rushed home from North Wildwood. It was a long 6 days filled with fever, lost of some bodily functions and horrible blistering skin. And then 8 days later he was hospitalized again.

 The 2nd round of hospitalization this month was kind of weird. We went for a routine visit on monday and Eric felt fine. He had an abscess on his face that had started as a blind pimple. But if you know E personally, this is nothing new with his eczema and history of staph. But when the bloodwork came in the the numbers were not good. His WBC had jumped to 34,000 and Kemeny insisted he be admitted. He had brought Logan to this appointment with us, so needless to say we were not prepared for a stay in NY. Eric was pretty upset they admitted him, especially considering the fact that he had just gotten out of the hospital. Plus it was somewhat of a deja vu feeling, as Eric was hospitalized for 4 weeks right before the 4th of July.

Logan and I stayed at a hotel room that night, and my dad saved the day by coming up to NYC, meeting me on the train platform, and taking Logan home. During this stay Eric felt ok up until he was about to released, thus causing his stay to be extended. He ended up having a staph infection, a rare skull bone infection called mastoidosis (effects 0.004% of the population in developed nations)and ended up with c-diff. (if you look up c-diff it super sucks and is highly contagious). But we were able to get the meds for him to come home, where he will spend 4 weeks on antibiotics. Man can't catch a break.

CEA level had more then doubled in 2 weeks, which concerns me greatly. Eric is not on any chemo right now, and his surgery to remove the lung tumors has been pushed back twice because of infection. His numbers have not been this high since pre liver resection last year. If you scroll down below you can see the CEA level trends since he was diagnosed. Hoping that the reason behind this was the brewing infection, and not more disease growing elsewhere in the body. I do know that the neck/head/brain are good. He had multiple CTs of that area during his stay last week. We have an appointment in new york tomorrow, so I guess we will find out what the next plans look like. Surgery to remove the tumors from the one lung is scheduled for july 20th, with the following lung to be at a date after that. In the meantime we continue to pray. I will probably write more later, but I figure this is the quick update.

 These are pics of Eric when he was up at Sloan.

We passed the time talking about our Respite trip in January care of For Pete's Sake Cancer Respite Foundation

Thursday, May 10, 2012

My Chemical Romance

Eric started his 2nd round of xeloda. We have to monitor him for some pretty serious side effects that could cause him to have to go to the ER and stop the chemo. But so far he is doing ok. The worst effect he has had is the Hand-Foot Syndrome, which is causing astronomical amounts of pain for his already dry and sore skin. We have pre-surgical testing coming up to remove the tumors in the lungs... One day at a time.
We WILL be the 3%!!

Tuesday, February 21, 2012

Scans, Scans, Scans...

E had a PET Scan yesterday at Sloan. Afterward he had treatment, but did not meet with the doctor. On March 2nd he will have a CT Scan, which was scheduled before the PET Scan was. We will not find out the results for either scan until our March 5th appointment. This also happens to be my 31st birthday, so I am hoping for the gift of improving health and clear scans.

As always, we ask that you continue to keep E and other cancer warriors in your prayers. We are praying to Catherine McAuley, foundress of the Sisters of Mercy, for Eric's miracle. She has been declared Venerable for all her works, and is well on her way to sainthood. Our hope is that Eric's miracle can be a result of her divine intercession.

O beloved Catherine,
through the power of my
most compassionate Lord
and Saviour, Jesus Christ,
I humbly beseech you to
look with love and pity on
Eric who is ill at this time.
Stir up in me the same
passion that impelled you
to respond to the needs of
your time.

Bless me with the sure
knowledge of your
presence and with a
complete trust in your
providence.

Use once again your spirit
of compassion and your
ardent desire to Alleviate
suffering and to restore
Eric to full health, if it is
God’s holy will.

I ask this in the name of
Jesus who lives and reigns
with the Father in unity
with the Holy Spirit.

Amen

Sunday, February 5, 2012

How the hell did this happen?

When Eric was first diagnosed, I didn't wonder how or why he got cancer. I just went into battle mode. I think I have said that a million times before. But over the past few months his cancer development has haunted me. I mean for christsake, how can one have NO SYMPTOMS for years...how can it be stage IV....when the hell did this start??


Eric has no family members that have had colon cancer, or any precancerous afflictions. No Crohns, no polyps, no issues. He never had blood in his stool, or irregular bowls really. I mean he poo'd when he needed to poo, didn't suffer from constipation, lose weight, or have difficulty with his intestines, yet when they finally discovered he had cancer, he was like 90% blocked in his colon. Forealzies, he could have died of sepsis before they ever found this.

No joke Eric had no symptoms until 12 hours before he went to the ER. Yes you heard that right 12 HOURS!!! He had been suffering from a sinus infection, so he took off Monday and went to the doctors. He was given meds and decided to take off Tues as well. Wednesday morning he woke up in the morning with me with, I believe ran some errands or something, then fell asleep because he just felt tired (not uncommon for a police officer who works shifts). He set is alarm clock so he would be awake for Logan when he came off the bus. Around 2:30-3 he started texting me telling me he was in a ton of pain. I called him. Convinced him to just go get himself to the doctors, and I would have someone get Logan. I had just started my job as an SBIS and as at school. It was the end of September. He went to the doc's office and they immediately saw he was in distress. They can a few tests and told him to get himself to the hospital. They weren't sure if it was a PE, his appendix, Pneumonia or what. De describe his pain like someone was stabbing him in the side and twisting the knife. I met him at Abington's ER.

He got so many tests that night. First the xray, then the CT- Scan, Then the MRI...they knew something was in the liver. They saw a thickening in the colon. But they didn't tell us a damn thing, they just admitted him and had him scheduled for a liver biopsy the following day, Thursday. The whole time I know they knew. They never gave us any information, made us sweat it out the whole weekend. Scheduled him for a colonoscopy that Monday. it was torture. Then of all people, a fucking 1st year med student told us Eric had cancer. She thought we had already been told and asked us if we wanted more info about his cancer. It was a nightmare. My poor Eric. He just cried and cried silently, and I just held him. I didn't cry, nor did I utter many words. But man did I pray. I screamed inside. I prayed so hard to God while I was holding him. I prayed for Eric to be well, I prayed for it all to be a big mistake even though I knew it wasn't. I prayed to grandfather Jim. I prayed with all of my being for him to give me strength. But I never, not once, asked "Why?".

By the grace of God my Aunt Eileen and my Mom Mom were there. Eileen knew the doctor, so she was able to remember the things I couldn't. I truly think my Pop Pop sent them. He wouldn't have wanted me to be alone. He made sure others were there so that I didn't fall apart. That was Monday. By Wednesday they were removing a part of his colon. Saturday he was discharged, and less then 2 weeks later we were meeting with Dr. D'Angelica up at Sloan. We raged on.

But this fall, after 16 surgeries/procedures, and months of chemo, 2 bouts of MRSA (one where I almost lost him), 6 months of being "cancer free", and the heartbreaking news that the cancer was back, I started to question. And I mean like really question. how the hell did this happen to him? Was it something he was born with, was he genetically flawed, did something else cause this?? How long had he had cancer? Could we have prevented this? Was there something we missed?
I had always been worried about colon cancer for myself. My paternal grandmother died of it. I knew the signs, he hadn't shown anything! And Eric was relatively HEALTHY! He was a strong, and active Police Officer. his only health issues were asthma, allergies, and skin problems. He wasn't sickly. So what the fuck made this happen?

It was then, I started to piece things together. After researching online, and looking at the normal progression of poylps to full cancer, i estimated that Eric was around mid to late 20's when his cancer began to develop. During that time he was in his best shape and most active. It was during that time that he was a narcotics officer. It was during that time, that he was headquartered at the former Frankford Arsenal, which ironically was located right next to Rohm and Haas Plant, and the Sunoco Chemical plant. I started to remember stories he told me about being told they could not drink the water, and that certain buildings/areas were considered hazards. I recalled one story he told me about the cops going out to there cars after a shift and there were million of dead bugs everywhere, like a light dusting of snow on the cars and the ground. He had also told me stories of warnings that had come from the plants when something had happened. I never recalled the specifics to those stories though. But the one thing I finally remembered, because he had mentioned it on several occasions, was the asbestos in the buildings. There were times when things broke (tiles, walls and such, whee they were wet down and covered before it could be moved. But contractors did what they want, and the buildings were so old they were forever falling apart. He was working so many hours that he practically lived there. And day after day he was being exposed to god knows what.

See the asbestos thing didn't jump out at me at first. I thought that led to mesothelioma and lung cancer. But I was CONVINCED that working at the arsenal had something to do with Eric developing cancer. I started researching environmental factors related to colon cancer. And there I found it, studies showing links between asbestos exposure and colon cancer. What.the.fuck.

We go up to NYC tomorrow for treatment, but we won't be seeing Dr. Kemeny again until March. But this is eating at me, and has been for quite some time. I finally shared my thoughts with Eric this weekend. I didn't want to scare him or overwhelm him, and I didnt want him to dwell on the negative, but it was irking the shit out of me. People still work there, hell my stepson goes to high school in the arsenal. i want to try and talk to someone about this. In my amateur research I saw that the arsenal was cited by the EPA in 2010 for not following protocol when disposing of Asbestos. I am sure that was going on for years, they just finally got caught. I also found that the arsenal is on a "hot list" of workplaces with extremely high likelihood of asbestos exposure. As crazy as it sounds, it all sort of makes sense. I need to talk to his doctors and find out if these is plausible. No one should have to go through this hell. I would feel terrible if I might have found a reason and didn't help prevent others from it.

Friday, February 3, 2012

bill collectors....

They love to use google. They are getting smarter. I think they google me and E and found this blog. So this message is to them:

-My husband has stage 4 cancer....so whatever money you are trying collect (if i in fact even have a debt to you) I am spending it on keeping my husband alive

-my mortgage is the 2nd most imp thing besides his medical needs/bills

-I haven't lived with my parents in nearly 8 years, stop calling them because that will make me not call people back.

-Dont try to bully. No one likes a bully. I am fighting for my husbands life, so I dont mind fighting with some asshole across the country on the phone. Hanging up is pretty easy, and i have all unknown numbers go to VM, soooooo You really aren't "bothering me"

-When things get better, I will fix my situation. Until then, the only thing I care about it my family, and keeping my husband alive.

Wednesday, February 1, 2012

"If there's a book you really want to read, but it hasn't been written yet, then you must write it."-Toni Morrison

I feel like I am all alone. I know I am not. I know there must be other people out there going thru the same crap I am. But God do I feel alone, almost always.

I spent more time then needed talking to a woman at Gilda's Club yesterday afternoon then I really should have. I was looking for a support program for Logan. She was asking me about Lo and I started giving her background info. Then I started talking about myself, and how there is nothing out there, how I feel so lost and alone. She didn't really say anything on the other end, and I was grateful for that. She just let me vent. I needed that. When I got off the phone, i cried. Thank God I was alone in my empty classroom.

Things are really starting to hit me now. I am losing strength, losing momentum. The first year I ran on autopilot. I was in fight mode. There was never a dull moment. Not only was I fighting for and with E, but I was also trying to cope with him hating me.

It has taken a long time to finally admit this to anyone. I haven't really told a real person, but here I am writing it on the internet. My husband hated me. All the websites I consulted told me this was normal. That cancer patients often take it out on those they love the most. Its almost like a natural instinct to push away those that love you, so, in the patients mind, you won't be hurt if something tragic happens. I called bullshit on that often. I mean really, I have heard tragic diagnosis bringing people closer, but rarely pushing them apart. But how the hell would I really know, because I couldn't find anyone else like me out there, a 30 year old cancer spouse and caregiver.

There are lots of books and support groups, and online resources for parents of children with cancer. There are lots of things for breast cancer spouses, and people whose older parents have cancer. But nothing for people like me. Hell even E's cancer isn't common in young adults, although it is becoming increasingly so. It seems the only people close to my age are husbands whose wives are battling breast cancer. And they are lucky because they are given so many support. I am not bitter, I just wish there was something for me.

When we sit in the waiting room at the oncologists office, we look so out of place. I talk to my old lady friends who are fighting colon cancer, and their spouses. But shit its not the same. They have been blessed with the gift of time. I have been married for 40 months. E has been fighting cancer for 16 months. That's 40% of the time I have spent married. 40 effin percent!

Since I am all alone in this, I have turned to writing. Some of the stuff I wrote never made it to the blog. It was just too personal. Those months when E hated me were really really hard. I am thankful that it really was the treatment, as I had suspected, and not a true hatred for me. He finally realized just what he was doing and saying. Don't get me wrong, things aren't perfect. But then again I don't think any marriage is perfect. If its perfect, then in fact its fucked up. Because someone in that relationship is hiding their feelings, or they are putting on a show for everyone else. I have seen plenty of that, especially being a cop's wife. FAKE ASS FUCKED UP PEOPLE/MARRIAGES.

I am thinking about writing a memoir. More for myself then anyone else. It would be to help people who feel completely alone. It would be raw, it would be from the heart, it will show my hurt and my sorrow, and my happiness. It will show what it is really like to be a raging bitch inside, but have to play nice. It will show what it is like to fight tooth and nail for the love of your life. It will show what it is like to have your heart break into a million pieces. It will show what it is like to be all alone. It will contain foul language, and lots of ellipses...because I like them. it might even lack the proper use of capital letters because i am kind of a lazy typist. yea...this might just be a decent idea.

Monday, January 30, 2012

Iron Chef: Jose Garces (said in over exaggerated Japanese Accent)




Yea there is the birthday boy. He sure as hell doesn't look like he has cancer. Damn you wouldn't even know that earlier that morning he was sick as a dog from chemo. But he picked himself up and got all sexified for our romantic birthday dinner for 2 at Amada.

If you know Eric at all, you would know he LOVES Iron Chef. So I thought it would be a great idea to go to Jose Garces' place. We loved it, and as a bonus it was restaurant week. We had a great time. He even said next year we should go out with a few couples/friends. I loved hearing that....next year. Damn that man is so positive despite everything.

On another great note I got to tell him today that his CEA level went down from 6.0 to 5.3. Basically the cancer cells are dying....the treatment is working. Woohoo!

Thanks for the continued prayers...keep 'em coming. I would also like to send a special prayer request for another Cancer Warrior, Linda T. Linda just found out her breast cancer is back after 8 mo of remission. It is in her liver, nodes, and bone. She has 3 kids, and her hubby is a Philly cop. She needs those prayers too. Damn I hate this disease.

Friday, January 27, 2012

“Today you are You, that is truer than true. There is no one alive who is Youer than You.”


Dr. Suess....he was the man. too bad cancer snatched him too, although he did live you the impressive age of 87. He brought joy to so many. He made a difference in the world.

Yesterday was Eric's 36th birthday. Just another day he said. He has never been a big birthday person. It was I who made the big deal about birthdays. Last year he spent his birthday at Princeton University Hospital. He went to the ER and was admitted on his birthday. His gift for his 35, 5 fun filled days in a private hospital room. It was kinda cool, the room had 2 couches and a coffee table in it. Too bad it was a quasi blizzard and I couldn't entertain. But I did get him a birthday cake from nutritional services, Even a candle, but I couldn't light it.

This year for his 36th birthday, Eric spent it sick in bed from chemo. Infusion started on Wednesday and runs until this afternoon. I will de-access him when I get home. We didn't do anything special. I got him fried chicken because the grease helps the nausea, and i laid in bed with him scratching his head and trying to sooth his broken out skin (this chemo makes his skin burn...he looks like he had acid poured on him).

So this birthday wasn't a fancy one. We didn't have a big party or go out. Heck I even forgot to give him his card. But this year was a testament to his survival. He made it to another birthday, with hopefully many more to come. Birthdays really aren't a big deal. At least not until you aren't sure just how many of them you will have left. Then, they take on a whole new meaning. They become milestones...and another mile marker in ones journey. Eric has been alive 36 years. I have been blessed to have shared 7 of those years with him.

So i guess I am the one who received the gift when you really think about it. I am the lucky one.

Wednesday, January 18, 2012

So take a deep breath, pick yourself up, start all over again

Now nothing's impossible, I've found for when my chin is on the ground,
I pick myself up, dust myself off, and start all over again.
Don't lose your confidence if you slip, be grateful for a pleasant trip,
And pick yourself up, dust off, start over again.
Work like a soul inspired until the battle of the day is won.
You may be sick and tired, but you be a man, my son.
Will you remember the famous men who have to fall to rise again,
So take a deep breath, pick yourself up, start all over again...


Ahhh, Old Blue Eyes....if only life were that simple. But there is some wisdom to that. And that is exactly what we are trying to do.

A day after we came back from out amazing respite thanks to FPS, Eric had to go to Sloan for a CT Scan, and to meet with his oncologist followed by treatment. It was a long day to say the least, and he was stuck up there himself.

Sadly eric was told by Dr. Kemeny that they found more tumors on the liver. I guess this was to be expected, considering the PET Scan glowed when he had his tumor removal surgery a few weeks back, but it is still tough to hear nonetheless. I was hoping that the rounds of chemo since the surgery would have made them nonexistent, but those suckers are fighting the chemo and not backing down. Luckily, Eric handled it ok, and even posted on facebook a status about how it looks like this beast (cancer) wants to go a few more rounds with him, but he's ready to keep fighting it. He said he won't give up. Its a beautiful thing to see despite getting pretty shitty news. I am so proud of him.

On the plus side his CEA level FINALLY went down to 6 after holding steady at 7.9 for over a month. In the words of Madea...


So we keep fighting on. Taking every day as a gift from God, being thankful for all that we do have, and continue to be blessed by crossing paths with special people during this journey. I have said this before, and I truly mean it, if it had not been for this experience, I don't think we would have learned what love means. Love isn't just a word or a feeling, it's an action too. And we have been shown love in so many places we may never have seen it. I have also learned a lot about life. Wisdom and beautiful secrets usually only those with many more years then I get to share. As much as cancer sucks, and boy does it suck, we are lucky. Without cancer, we would have never been so truly blessed and touched in so many ways. Much love and happiness to all who read this....(if anyone even does).


Monday, January 16, 2012

For Pete's Sake, We took a break from Cancer...

As many of you may already know, our family was blessed to be the recipients of a respite vacation to Florida, thanks to the For Pete's Sake Cancer Respite Foundation. For a few days we got to be a regular family. This quickly became a vacation that will always be closest to my heart. Word's cannot even describe what FPS has done to raise our family up. We are so lucky, and hope to pay it forward by participating in the For Pete's Sake, Walk fun walk at Citizen's Bank Park in April.Click here to directly join or donate to our team, "Phightin' for Officer Dial.

Eric and the boys were shocked the day we left for our respite to open the front door to several area news outlets, a limo, Marci the founder of FPS, and several of his fellows Officers in the Philadelphia Police Department there to send us off. One of the longer pieces was done by CBS Philadelphia...click for the report. Logan was a hoot when they interviewed him, I think I looked like a dork.

One of the things they ask you to do as part of the respite is to write an entry in the journal at the FPS home in Davenport, FL (yea they bought it for cancer patients and their families...soooo cool). The first day we arrived I read through the journal and read the other entries from Sailors and there families. It was really touching. FPS have touched the lives of so many people. FPS paid for our flight, lodged us in the organizations home (a beautiful 3 bedroom with a heated pool right outside Disney) tickets to Disney/Universal/Sea World, a rental car, and a stipend for food and other expenses. WOW. Anyone who can donate to this group, we would be so thankful. They are good people. I blogged about FPS before here. Please take a moment to read that post, as it will explain FPS even more.

I'm still trying to figure out how to share with you the magic of this experience. I think the best way is to share with you what I wrote in the journal at the home, and to share with you a picture I took right before we watched the sunset into the Gulf of Mexico....


Happy New Year! May this year bring us all good health, amazing memories, and much LOVE. Thanks to FPS, our memories have already become beyond amazing. Since Eric's diagnosis in Oct of 2010 (Stage IV Colon mets to liver), our entire family transformed from "normal dysfunctional" (lol) to "battle mode". The Dial's declared WAR ON CANCER!

Every step of this process was an easy one. Peg and Mariann went out of their way to make this the most amazing respite possible. And Marci even showed up at our house the day we left with a limo and 3 news stations! Imagine my husbands surprise when he opened the door to see over 20 of his fellow Philly Police Officers, along with Marci and the limo driver (as well as the cameras all around). Our boys were in just as much shock as well! Until we boarded the plane, the youngest had no idea where we were headed.

15 months afo my husband was told he had 8 months to live. Yet this week he laughed and smiled as if those words had never been said to him. He was once again the man I fell in love with. Even though he felt sick in the beginning of our trip, he pushed on, determined to enjoy every minute of his break from cancer.

One of the magical parts of this trip was watching Eric reconnect with his 16 year old son. This was something they truly needed. Cancer had really reeked some havoc on relationships. Now I have captured special moments, and they will have memories stored up that will help them get through the tough times ahead. See in November, after 6 months of being in remission after his liver resection, and sending 21 days in the ICU from post surgical infection , Eric was told his cancer was back. Tumors were found in the remaining "healthy" part of his liver. That sad news made this trip mean that much more.

Tomorrow we leave and go back to reality; the kids go to school, I go back to my job as a teacher, and Eric back to being a Philly police officer. And the day after that we go back to cancer, and another CT scan at Sloan-Kettering in NYC. But for 1 glorious trip, cancer did not define us, we DEFIED it!

Much Love,
Eric, Jeaneane, Mark & Logan





Wednesday, January 11, 2012

2 VERY special Events

Hello all! I will be sending out an update soon about our amazing respite. But in the mean time, I wanted you to all mark your calendars for 2 upcoming events that are very important to us, and that we will be participating in, the "Get Your Rear in Gear" and "For Pete's Sake, Walk". We have created teams for both, and below I will give you more information.



Philadelphia Get Your Rear in Gear-
5K and 10K Run, 2 Mile Walk and Kids Fun Run
Sunday March 18, 2012

This is our 2nd year participating in this event, which benefits the colon cancer coalition. The event is held at the Art Museum. Non runners can easily participate. Last year we had a nice turnout for our team and raised over $1000.

you can register for this event here:
http://www.getyourrearingear.com/events/list/2012/philadelphia-pa-2012/

click on "JOIN A TEAM" we are DIAL'S POOPER TROOPERS



THIS IS AN AWESOME FAMILY EVENT!!!!! AND THE KIDS WILL LOVE BEING ABLE TO GET ACCESS TO THE PLAYING FIELD AT CBP (AND ADULTS TOO)

Enjoy VIP access to Citizens Bank Park - without the lines! For Pete's Sake, Walk! is a 3 mile fun walk. Following the 3 mile route, walkers will be allowed to round the bases and take a photo in the dugout!

You can walk as an individual, register your family, join an existing team of walkers or form a team of your own!

You can register the entire family here:
http://takeabreakfromcancer.kintera.org/faf/home/default.asp?ievent=997534&lis=1&kntae997534=BA5CB0666D674FB0BBA9F3B7643E3756

and please join our team: Phightin' for Officer Dial

FPS has a very special place in our hearts and we would really love for all of our friends and family to join us for this very special event. FPS sent us on our amazing respite to Florida last week. We would love to help other families be able to enjoy this amazing experience.