I haven't updated since May, mostly because not much had happened, then life became a clusterfuck. Eric went through 5 rounds of Xeloda before being hospitalized for chemo toxicity. Well that's what they think it was, because they really had no idea. We were stuck at Abington for 6 damn days. I was down the shore for the Fallen Heroes M/C Ride. Eric was supposed to participate, but felt so sick he went home. The next day my Dad took him to the ER, and I rushed home from North Wildwood. It was a long 6 days filled with fever, lost of some bodily functions and horrible blistering skin. And then 8 days later he was hospitalized again.
The 2nd round of hospitalization this month was kind of weird. We went for a routine visit on monday and Eric felt fine. He had an abscess on his face that had started as a blind pimple. But if you know E personally, this is nothing new with his eczema and history of staph. But when the bloodwork came in the the numbers were not good. His WBC had jumped to 34,000 and Kemeny insisted he be admitted. He had brought Logan to this appointment with us, so needless to say we were not prepared for a stay in NY.
Eric was pretty upset they admitted him, especially considering the fact that he had just gotten out of the hospital. Plus it was somewhat of a deja vu feeling, as Eric was hospitalized for 4 weeks right before the 4th of July.
Logan and I stayed at a hotel room that night, and my dad saved the day by coming up to NYC, meeting me on the train platform, and taking Logan home. During this stay Eric felt ok up until he was about to released, thus causing his stay to be extended. He ended up having a staph infection, a rare skull bone infection called mastoidosis (effects 0.004% of the population in developed nations)and ended up with c-diff. (if you look up c-diff it super sucks and is highly contagious). But we were able to get the meds for him to come home, where he will spend 4 weeks on antibiotics. Man can't catch a break.
CEA level had more then doubled in 2 weeks, which concerns me greatly. Eric is not on any chemo right now, and his surgery to remove the lung tumors has been pushed back twice because of infection. His numbers have not been this high since pre liver resection last year. If you scroll down below you can see the CEA level trends since he was diagnosed. Hoping that the reason behind this was the brewing infection, and not more disease growing elsewhere in the body. I do know that the neck/head/brain are good. He had multiple CTs of that area during his stay last week. We have an appointment in new york tomorrow, so I guess we will find out what the next plans look like. Surgery to remove the tumors from the one lung is scheduled for july 20th, with the following lung to be at a date after that. In the meantime we continue to pray. I will probably write more later, but I figure this is the quick update.
These are pics of Eric when he was up at Sloan.
We passed the time talking about our Respite trip in January care of For Pete's Sake Cancer Respite Foundation
No comments:
Post a Comment